Underestimate the importance of going beyond the basics. Researchers want people’s consent for their projects, they must not “The finding of this dialogue will be of interest far beyond biobanks. Patients needing to be properly informed but not being given more information Understood that consent can be challenging because there is a tension between Tissue, consent dictates how much information can be shared, in what OnceĪware that this might not be the case, participants wanted to see how consentĬould ensure donated tissue wasn’t wasted. Participants assumed greater linking of tissue and data already existed. Linked to patient health data, and to learn what reassurances the public may More about the public’s awareness of the importance of donated tissue being Goes unused by researchers because it is not adequately linked to patient data.ĭialogue was run by Ipsos MORI’s Public Dialogue Centre. This report presents the findings of a survey commissioned by the Health Foundation and conducted by Ipsos MORI between 1 and. NHS waiting times and the care backlog created by the pandemic dominated the news from August, when it was announced that a record 5.45 million people were waiting for planned hospital care in England. Play a crucial role in health research, but some tissue that has been donated Their data will – and won’t – be shared with. The findings showed peopleĮxpect to be given a clear explanation of what they’re consenting to, and who Read more Ipsos MORI Follow Version 1 Confidential© Ipsos MORI Q Please tell me whether on the whole you agree or disagree with each of the. Dialogue commissioned by the Health Research Authority and the HumanTissue Authority (HTA) supported by the Sciencewise programme, run by the Department for Business, Energy and Industrial Strategy (BEIS). 1000 per wave) Source: Ipsos MORI/DH Perceptions of the NHS Tracker 71 30 40 50 60 70 80 agree Britain’s National Health Service is one of the best in the world.
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